We would really appreciate any information or leads that you may have, no matter how small you think it maybe.
Having a child with an unknown syndrome, brings its own difficulties to a family, as you don’t have any template of what to expect, as that child gets older and grows.
Maybe your information about a genetic disorder:
- maybe not the correct syndrome,
- or maybe you are not sure ‘what your thinking’ has the same symptoms as this child…,
either way, we would love to hear from you.
One thing your posting will certainly do, is allow us to open an avenue to explore, and investigate. Whether it leads to anything or not, it moves us forward.